Saturday, 19 December 2015

What is happening?

I don't know what is happening
But I've lost 20 followers in the past few hours 
I don't know what I have done or said
Will someone please tell what is going on?

Alive and kicking!

Just a little photo post 
To show you that I am alive and kicking
Albeit a bit pale and wan
Lea is constantly by my side these days 
And Honey keeps an eye on things from her bed 
Hence why she is not in the photo
Happy Saturday!!



Friday, 18 December 2015

Home sweet home

I'm home 
Praise the Lord I am home
I was discharged yesterday at lunch time
My doctor came in the early morning
And told me that my bloods were almost back to normal
And I would be discharged that day
It was welcome news
Hospital life is fine for a while
But there's no place like home

All things were pointing to my being discharged 
I was allowed to eat a low fat diet
I was taken off the drip
I had no pain
And was generally feeling a lot better
And of course 
Hospitals don't tend to keep you one minute more than necessary 
So 
I packed up my little bag
Got dressed for the first time in almost a week 
And made sure to have a little chat with all the ladies before I went
They were especially nice on my ward
Ladies in for all kind of things from kidney stones to bladder problems 
We all bonded over cups of tea
And really looked out for each other 
I wished them all luck
Then went to the day room to wait to be formally discharged 
I was barely out of my bed before it was filled 
In fact there was a girl in the day room waiting for my bed 
They don't mess around in hospitals do they?
My Dad arrived to pick me up
And we continued to wait to speak with doctor and get my prescription
Even though I was feeling better
I still wasn't back to myself 
And was incredibly tired
I had to fight sleep sitting with my dad 

Eventually the doctor came
And spoke to both of us 
He explained that they thought the pancreatitis was as a result of being on my meds for so long
Exacerbated by my ED
And to stay well I needed to watch my diet 
Take it easy 
And maybe try and come off some of the meds 
We thanked the doctor
And made our way home 

There was a flurry of activity when I arrived home
The two workmen who did our kitchen were there 
And they gave me a racous welcome home
And of course Honey and Lea went beserk 
I've havent seen Honey move so fast since she was a puppy 
There were so many people in the house 
They didn't know who to go to first 
After sitting with them for a while 
I went and unpacked my bag 
And changed in to my pjs
And retreated to the couch with a cozy blanket 
Where I promptly fell asleep for the evening 

The rents thought that when I woke up was a good time to tackle me about my lifestyle 
I make no secret of the fact that I lead a very unhealthy life style
My food is nothing short of atrocious
I purge 
I don't get enough vitamins and minerals 
More often than not I am dehydrated 
And basically I am like a grown up child 
I eat what I want 
When I want 
And don't take my health in to consideration one jot
Heck, I only gave up smoking because of the inflated price of them
Not because of my health
I guess when you don't like yourself very much 
You don't really care about the health of your body 
You don't care if you live or die 
It makes no difference to me
But I really need to start taking proper care of myself
No more crisps
No more chocolate 
No more eating what I want 
And definitely no purging 
Which is going to be the toughest part I just know it 
I've also decided to stop weighing 
My scale is not that reliable 
But weighing yourself everyday
And recording it
Can not be healthy right?
Anyway
I don't need a scale to tell me I've lost weight
I just need to look in the mirror to see that 
Anyway
I'll just take it day by day 

I had no appointment with my doctor this morning 
But I rocked up and 9am anyway
And he saw me pretty quickly which I was grateful for 
I got my prescription
And headed to the chemist 
Where I am as I type this

This week has been a bit of an eye opener 
Change has to happen if I want to live 
And I do 
I really do 
As I always say 
Baby steps all the way

Thursday, 17 December 2015

Day 5 in hospital

Yesterday I was feeling so much better
Still had pain 
But I could bear it without pain relief 
I was preparing for another foodless day
When my doctor came in to the ward to do his rounds
I swear he barely stays a second at my bed
He starts talking as he's walking towards the bed 
And barely even stops 
Before zoom....
He's gone again
Anyway 
He gave me the good news that I could eat a little yesterday 
I was over the freakin' moon
I mean I got so excited at the prospect of a cup of proper  tea and some toast slathered in butter 
Breakfast was over so the student nurse went and got me said items
I made the tea and tasted it
It was hot and sweet
And when down my throat like honey
Then buttered the toast
It was a little cold 
But I didn't care 
It was still the most delicious thing
I'm on a low fat diet
As apparently fat agrevates the pancreas
That's going to go well....

The afternoon went by in a blur
I had been awake since 4 30am
So by the time I took my meds 
I was starting to nod 
It was funny because all my room mates were telling me to lie down
Then my sister rang me
And I fell asleep 
And dropped the phone in the middle of the conversation
I woke up again
All I could here was 'Hello? Hello?'
I didn't know where the voice was coming from 
And then realised it was my phone
Very funny

My Dad came in the afternoon
And we sat in the day room 
He is taking this admission very seriously 
And gave me quite the serious lecture about changing my ways 
My food 
My daily routine 
Meds 
The whole kit and kubudle
I know
I don't need to be told 
Some things gotta give
And it did 

At lunch time I had a ham sandwich and tea 
As hospital sandwiches go
It was decent enough
Enough so for me to wolf it down
By this stage I was off my drip
And thank God 
Because it was such hassle bringing it with me everywhere I went
The doctor also said that I might get home today or tomorrow
Which was super duper news
It's Thursday morning now
And I am just waiting for my doctor to come around 
I guess it will depend on my bloods
And how high the amylase in my blood is 
It has been coming down since yesterday 
So I am hoping for some good results

Hospital stays are not that enjoyable
Especially if you are really ill and in pain
The thing that eases that discomfort are the positivity and kindness of the nurses
And the generosity of the other ladies in the ward with me
Anyone who has been in my room has been lovely 
And we all look after each other 
Which is nice 

So 
I will update again later 
To let you know if I get home or not 
I mean time 
I hope you are enjoying the run up to the holidays
It doesn't feel much like Christmas in here at all
Cross your fingers that I get home.....

Tuesday, 15 December 2015

Day 4

It's early morning here again in hospital 
About 6am
And day 4 of no food
I was allowed two half cups of tea yesterday 
Which were absolute heaven
I gulped them down like water
When the night staff came on
I asked one of the nurses could I weigh myself in the morning 
She wasn't too sure that it was a good idea
But I insisted that I wouldn't have a hissy fit
So the nurse just brought the scales around
A dial one in kilos 
I stood on it
And was shocked to see I had gained three kilos 
I asked the nurse how was that possible when I haven't eaten in 3 days
She said it was the fluid
That they are pumping litres of fluid in to me every day 
And that it will settle down again
Before I had a complete meltdown
I remembered that the last time I was in hospital with pancreatitis 
I gained weight too while I was there
Then when I got home
The weight fell off me
So I won't panic just yet

I'm getting to know the ladies on my ward 
There is a lot of shuffling about 
Moving people in and out of beds
But on the whole 
The people are lovely 
Some are sicker than others 
Some don't talk at all
My last neighbour talked continuously 
Like a mantra over and over against
She was 92 
A night woman 
In her day she had been a pharmacist
She went home yesterday
And two very handsome ambulance men came to take her home 
Boy was I jealous.

I also asked the nurse if she thought I'd be allowed eat today
She said not a chance
I was crushed 
I was holding on for tea and toast
It was the only thing keeping me going
She also said that I'll be here for a while
Which is also not good news
Christmas is fast approaching 
And desperately want to be home
All I can do is hope and pray that this thing clears up by then 

I just wish I could sleep more 
But it's just not happening 
Even with a sleeping tablet 
I'm awake at 5am
With not a hope of getting back to sleep 
I may ask if the dosage of the zimovaine can be increased 
As I am exhausted

I was speaking with my mother last night
She told me that I need to start taking better care of myself 
I guess this is true
I don't eat properly 
I purge 
This is all taking a toll on my body 
I just feel so fragile right now 
Like it wouldn't take a lot to bring me down for good 
Anyway
Christmas will be a chance to relax and rest 
And I'll do my best to stay healthy

I was wondering about you
How do you celebrate Christmas?
Maybe you don't celebrate at all
Do you have any traditions?
What do you eat on Christmas Day?
Inquiring minds want to know.....

Monday, 14 December 2015

The witching hour

It's early Tuesday morning here in hospital 
Before 5am
All the patients on my ward are sleeping soundly 
Making various different noises and grunts and groans 
One woman they have to move out of the ward at night 
As she is so very noisy
It's quiet though
All I can hear are the voices of the nurses in the distance
And the squeak of their sensible shoes on the tiled  corridor
Today is my third day in hospital
   
Yesterday was busy. 
I had an ultra sound scanin the morning 
In which they could see my pancreas was inflamed
Then I had an endoscopy done 
You know the one where the sedate you and send a little camera down your throat 
And have a look stout stomach and stomach lining 
By the time I got back to the ward. 
My parents were waiting for me in the day room
But I was still a bit out of it 
and couldn't even hold a conversation  with them 
Apparently 
At some stage  
I rang my sister 
 And just babbled down the phone To her  like a crazy person

The unfortunate thing is 
That I've been fasting since I came in 
Which means I have eaten since Saturday 
I am more than ready for some food
But part of the treatment for pancreatitis
Is to fast 
I swear I would give my left arm for tea and toast right now
My pain has changed more than lessened 
It now feels like a severe pulled muscle in my stomach
You know the kind where it's hard to move or get comfortable 
But I feel better
Not so much pain
Or at least it's pain I can bear

Edit: just saw my doctor this morning
My bloods are still bad 
And are in fact getting worse 
He asked me if I drink
As it's usually alcoholics that get pancreatitis
So I am still fasting 
This is day 4 with no food
But there is good news 
I'm allowed to have a cup of tea today!
And you know how much I love my tea...
It's the little things...

I must tell you about the staff here 
They really are lovely 
Some of them actually remembered me from last time which is nice
A nurses job is not easy 
They are being pulled in every direction
But they do their job with a smile 
And that makes all the difference 

Anyway 
That's all from me today 
I'm off to get my meds 
And try to get well

Take care my dear friends 

Sunday, 13 December 2015

Hospital

As I type this
I am currently in a ward in my local hospital
After spending about 6 hours in A&E yesterday
I was finally moved to a bed at about 6 30pm
Why am I here?
Well 
Let me explain 
I woke up yesterday morning at about 8am
I noticed that I had a kind of gnawing pain in my upper abdomen 
I didn't pass too much heed on it though
As its usual for me to have aches and pains throughout the day
So
I carried on with my normal routine
I let the dogs out
Made a cuppa 
And settled down to write my blog
The pain persisted 
But I did my best to ignore it 
Even though I wasn't feeling too good
I still brought the dogs out for a walk
This was my first mistake 
And my second was not bringing my phone with me 
I walked for our usual 45 minutes 
And on my way back
I began to feel really unwell
The pain worsened
I was dizzy
My whole body felt heavy
And I really thought I was going to pass out 
I stopped walking
I had to 
And sat down at the side of the road  trying to get my strength back 
I wasn't too far from home 
But I might as well have been one hundred miles away I felt so bad
I swear I thought I'd never get home
I walked a few steps 
Then stopped
And that was my pattern the whole way back
Eventually
After what seemed like an eternity 
I got home 
I dragged myself in to the kitchen 
And sat on the nearest chair
Oh the relief to be home 
I explained to my sister what had happened
Then my mother
The first thing she asked me was if I thought it was another attack of pancreatitis 
I wasn't sure 
As the pain wasn't in the same place as last time
You might remember back in 2013
I had rather a nasty bout of pancreatitis 
And was in hospital for a week
But I just wasn't sure this time 

It being  a Sunday 
The only doctor we could find was over an hour away 
I spoke to the doctor myself
And she gave me the option of going to see her 
Or going straight to hospital 
I figured it would make more sense to go to our local hospital 
But even then 
I still wasn't convinced that it warranted me taking such action
My mother and sister weren't convinced though 
I was as white as a ghost 
And I couldn't sit up straight
I took my own blood pressure
It was just a little on the low side 
The last time my BP was in my boots

So around lunch time
My mum and I set off for the hospital 
The weather was freezing 
And all the way in i felt we were overreacting 
I guess I was down playing how much pain I was in though
We arrived in A&E about half an hour later 
I was glad to see there were only a couple of people in the waiting room
I registered 
And then sat down to wait 
A short while later 
The nurse called me in to assess me
He was lovely 
I explained my situation 
The previous bout of pancreatitis
And my history of ED and addiction
He to me that his sister works in a hospital in London
And he knows it's not an easy thing to get over
Which I thought was kind of him to say
Again
He took my temperature and BP
And was sent out to the waiting room again 

Not long after 
I was called in to A&E
A pretty nurse who was quite heavily pregnant sat with me in a cubicle
And asked me some more questions
I explained about my bulimia
How I had been doing well up until a few weeks ago
When I began to lose weight
And the purging increased
She suspected that I had torn my oesophagus or my stomach lining
She also said I was dehydrated 
She put a canula in
And gave me some pain relief 
It didn't touch the pain though 
Then I was brought over to radiography for an x-Ray
Which turned out to be clear 
They had taken some bloods earlier
And the nurse came back with the results 
It turned out that they suspected it was in fact my pancreas
As the amalyse in my blood was unusually high 

All the while 
The pain persisted 
And I just couldn't get comfortable 
So they brought out the big guns
And gave me some IV morphine
It spread like warm water all through my body
And brought some much welcome pain relief 
At this point my other sister came in 
She was shocked when she saw me 
I was in the kind of pain that you can't get comfortable no matter what way you sit or lie
A while later
I asked for some more pain relief 
Cue more morphine

At one point 
I heard the nurses talking about me
That I had a bed in one of the wards 
And shortly after that 
I was moved up to a ward 
I was glad to get here 
As I felt I could relax a little 
And settle down for the night
I'm in a ward with mainly elderly ladies
The woman in the bed beside me has been non stop talking since I arrived 
She is obviously confused
And keeps trying to go home 
At the moment she is singing an unidentifiable song on repeat 
I'm a bit worried about my meds though
Because sometimes there can be an issue with the methadone
But I guess I'll worry about that tomorrow
Since coming to the ward
I've had two injections for the pain
But the pain persists 
And I generally feel exhausted and weary
I also saw the registrar last evening 
He said this bout could be because of my meds
Exacerbated by my ED
But they're not entirely sure yet 
So they are keeping me under observation

My mum left soon after I got settled on the ward
My sister had been looking after the dogs
They knew something was up yesterday
I guess they could sense the stress

It's now 6 30am
And I've just been woken up to have a new bag of fluids fitted
I'm fasting as of yesterday
And I am absolutely famished 
It's going to be torture watching everyone eating their breakfast 
But hopefully it won't be long until I can eat and drink
 
Last night was tough 
I was in a lot of pain
And even though I was wrecked
I couldn't sleep
It's not very comfortable twisting and turning with pain like that
So I asked for a sleeping pill 
Which the nurse got straight away
And about an hour later 
I fell asleep

I'm not sure what today brings 
Tests I'm guessing 
And a scan 
I'm sure my family will be up too
I just wanted to let you know where I'm at 
As I've had a couple of emails from people wondering am I ok
I am
Or at least I will be