Tuesday, 15 December 2015

Day 4

It's early morning here again in hospital 
About 6am
And day 4 of no food
I was allowed two half cups of tea yesterday 
Which were absolute heaven
I gulped them down like water
When the night staff came on
I asked one of the nurses could I weigh myself in the morning 
She wasn't too sure that it was a good idea
But I insisted that I wouldn't have a hissy fit
So the nurse just brought the scales around
A dial one in kilos 
I stood on it
And was shocked to see I had gained three kilos 
I asked the nurse how was that possible when I haven't eaten in 3 days
She said it was the fluid
That they are pumping litres of fluid in to me every day 
And that it will settle down again
Before I had a complete meltdown
I remembered that the last time I was in hospital with pancreatitis 
I gained weight too while I was there
Then when I got home
The weight fell off me
So I won't panic just yet

I'm getting to know the ladies on my ward 
There is a lot of shuffling about 
Moving people in and out of beds
But on the whole 
The people are lovely 
Some are sicker than others 
Some don't talk at all
My last neighbour talked continuously 
Like a mantra over and over against
She was 92 
A night woman 
In her day she had been a pharmacist
She went home yesterday
And two very handsome ambulance men came to take her home 
Boy was I jealous.

I also asked the nurse if she thought I'd be allowed eat today
She said not a chance
I was crushed 
I was holding on for tea and toast
It was the only thing keeping me going
She also said that I'll be here for a while
Which is also not good news
Christmas is fast approaching 
And desperately want to be home
All I can do is hope and pray that this thing clears up by then 

I just wish I could sleep more 
But it's just not happening 
Even with a sleeping tablet 
I'm awake at 5am
With not a hope of getting back to sleep 
I may ask if the dosage of the zimovaine can be increased 
As I am exhausted

I was speaking with my mother last night
She told me that I need to start taking better care of myself 
I guess this is true
I don't eat properly 
I purge 
This is all taking a toll on my body 
I just feel so fragile right now 
Like it wouldn't take a lot to bring me down for good 
Anyway
Christmas will be a chance to relax and rest 
And I'll do my best to stay healthy

I was wondering about you
How do you celebrate Christmas?
Maybe you don't celebrate at all
Do you have any traditions?
What do you eat on Christmas Day?
Inquiring minds want to know.....

Monday, 14 December 2015

The witching hour

It's early Tuesday morning here in hospital 
Before 5am
All the patients on my ward are sleeping soundly 
Making various different noises and grunts and groans 
One woman they have to move out of the ward at night 
As she is so very noisy
It's quiet though
All I can hear are the voices of the nurses in the distance
And the squeak of their sensible shoes on the tiled  corridor
Today is my third day in hospital
   
Yesterday was busy. 
I had an ultra sound scanin the morning 
In which they could see my pancreas was inflamed
Then I had an endoscopy done 
You know the one where the sedate you and send a little camera down your throat 
And have a look stout stomach and stomach lining 
By the time I got back to the ward. 
My parents were waiting for me in the day room
But I was still a bit out of it 
and couldn't even hold a conversation  with them 
Apparently 
At some stage  
I rang my sister 
 And just babbled down the phone To her  like a crazy person

The unfortunate thing is 
That I've been fasting since I came in 
Which means I have eaten since Saturday 
I am more than ready for some food
But part of the treatment for pancreatitis
Is to fast 
I swear I would give my left arm for tea and toast right now
My pain has changed more than lessened 
It now feels like a severe pulled muscle in my stomach
You know the kind where it's hard to move or get comfortable 
But I feel better
Not so much pain
Or at least it's pain I can bear

Edit: just saw my doctor this morning
My bloods are still bad 
And are in fact getting worse 
He asked me if I drink
As it's usually alcoholics that get pancreatitis
So I am still fasting 
This is day 4 with no food
But there is good news 
I'm allowed to have a cup of tea today!
And you know how much I love my tea...
It's the little things...

I must tell you about the staff here 
They really are lovely 
Some of them actually remembered me from last time which is nice
A nurses job is not easy 
They are being pulled in every direction
But they do their job with a smile 
And that makes all the difference 

Anyway 
That's all from me today 
I'm off to get my meds 
And try to get well

Take care my dear friends 

Sunday, 13 December 2015

Hospital

As I type this
I am currently in a ward in my local hospital
After spending about 6 hours in A&E yesterday
I was finally moved to a bed at about 6 30pm
Why am I here?
Well 
Let me explain 
I woke up yesterday morning at about 8am
I noticed that I had a kind of gnawing pain in my upper abdomen 
I didn't pass too much heed on it though
As its usual for me to have aches and pains throughout the day
So
I carried on with my normal routine
I let the dogs out
Made a cuppa 
And settled down to write my blog
The pain persisted 
But I did my best to ignore it 
Even though I wasn't feeling too good
I still brought the dogs out for a walk
This was my first mistake 
And my second was not bringing my phone with me 
I walked for our usual 45 minutes 
And on my way back
I began to feel really unwell
The pain worsened
I was dizzy
My whole body felt heavy
And I really thought I was going to pass out 
I stopped walking
I had to 
And sat down at the side of the road  trying to get my strength back 
I wasn't too far from home 
But I might as well have been one hundred miles away I felt so bad
I swear I thought I'd never get home
I walked a few steps 
Then stopped
And that was my pattern the whole way back
Eventually
After what seemed like an eternity 
I got home 
I dragged myself in to the kitchen 
And sat on the nearest chair
Oh the relief to be home 
I explained to my sister what had happened
Then my mother
The first thing she asked me was if I thought it was another attack of pancreatitis 
I wasn't sure 
As the pain wasn't in the same place as last time
You might remember back in 2013
I had rather a nasty bout of pancreatitis 
And was in hospital for a week
But I just wasn't sure this time 

It being  a Sunday 
The only doctor we could find was over an hour away 
I spoke to the doctor myself
And she gave me the option of going to see her 
Or going straight to hospital 
I figured it would make more sense to go to our local hospital 
But even then 
I still wasn't convinced that it warranted me taking such action
My mother and sister weren't convinced though 
I was as white as a ghost 
And I couldn't sit up straight
I took my own blood pressure
It was just a little on the low side 
The last time my BP was in my boots

So around lunch time
My mum and I set off for the hospital 
The weather was freezing 
And all the way in i felt we were overreacting 
I guess I was down playing how much pain I was in though
We arrived in A&E about half an hour later 
I was glad to see there were only a couple of people in the waiting room
I registered 
And then sat down to wait 
A short while later 
The nurse called me in to assess me
He was lovely 
I explained my situation 
The previous bout of pancreatitis
And my history of ED and addiction
He to me that his sister works in a hospital in London
And he knows it's not an easy thing to get over
Which I thought was kind of him to say
Again
He took my temperature and BP
And was sent out to the waiting room again 

Not long after 
I was called in to A&E
A pretty nurse who was quite heavily pregnant sat with me in a cubicle
And asked me some more questions
I explained about my bulimia
How I had been doing well up until a few weeks ago
When I began to lose weight
And the purging increased
She suspected that I had torn my oesophagus or my stomach lining
She also said I was dehydrated 
She put a canula in
And gave me some pain relief 
It didn't touch the pain though 
Then I was brought over to radiography for an x-Ray
Which turned out to be clear 
They had taken some bloods earlier
And the nurse came back with the results 
It turned out that they suspected it was in fact my pancreas
As the amalyse in my blood was unusually high 

All the while 
The pain persisted 
And I just couldn't get comfortable 
So they brought out the big guns
And gave me some IV morphine
It spread like warm water all through my body
And brought some much welcome pain relief 
At this point my other sister came in 
She was shocked when she saw me 
I was in the kind of pain that you can't get comfortable no matter what way you sit or lie
A while later
I asked for some more pain relief 
Cue more morphine

At one point 
I heard the nurses talking about me
That I had a bed in one of the wards 
And shortly after that 
I was moved up to a ward 
I was glad to get here 
As I felt I could relax a little 
And settle down for the night
I'm in a ward with mainly elderly ladies
The woman in the bed beside me has been non stop talking since I arrived 
She is obviously confused
And keeps trying to go home 
At the moment she is singing an unidentifiable song on repeat 
I'm a bit worried about my meds though
Because sometimes there can be an issue with the methadone
But I guess I'll worry about that tomorrow
Since coming to the ward
I've had two injections for the pain
But the pain persists 
And I generally feel exhausted and weary
I also saw the registrar last evening 
He said this bout could be because of my meds
Exacerbated by my ED
But they're not entirely sure yet 
So they are keeping me under observation

My mum left soon after I got settled on the ward
My sister had been looking after the dogs
They knew something was up yesterday
I guess they could sense the stress

It's now 6 30am
And I've just been woken up to have a new bag of fluids fitted
I'm fasting as of yesterday
And I am absolutely famished 
It's going to be torture watching everyone eating their breakfast 
But hopefully it won't be long until I can eat and drink
 
Last night was tough 
I was in a lot of pain
And even though I was wrecked
I couldn't sleep
It's not very comfortable twisting and turning with pain like that
So I asked for a sleeping pill 
Which the nurse got straight away
And about an hour later 
I fell asleep

I'm not sure what today brings 
Tests I'm guessing 
And a scan 
I'm sure my family will be up too
I just wanted to let you know where I'm at 
As I've had a couple of emails from people wondering am I ok
I am
Or at least I will be 

Saturday, 12 December 2015

Sunday

I want to apologise for not always replying to comments recently 
I have to admit
Sometimes I am afraid to look at my comments
As i am afraid of getting nasty ones
I actually experience anxiety before checking comments 
Even though 99% of comments are lovely 
There's always that one horrible one that can overshadow everything else
I'm also struggling to reply to comments 
As I am finding things tough at the moment 
I know I haven't been writing a lot of personal posts recently 
Because I feel like a bit of a fraud 
I'm supposed to be in recovery 
I'm supposed to be doing well 
Yet 
Every day I struggle 
Every day I weigh myself 
And every day for the last few weeks I've lost weight 
God forgive me
I am getting a buzz out of seeing the numbers go down
It's a sick sick game 
But oh so addictive 

The last time I saw Breda
She spoke about widening my circle
And doing more 
And I am struggling massively with this
I've pulled away from my friends 
All bar one 
Who I still meet every couple of weeks 
But apart from that 
And looking after my dogs 
I don't actually do very much 
I know I need to fill my days 
Get out and meet people 
Have a purpose 
I gets its a choice
Choose the ED and live a lonely miserable life
With no friends 
No job 
No college 
No dogs because I can't look after them 
No life 
Nothing but me and my childlike body for company 

Or else I could choose recovery 
And choose life 
Yes, life is scary
It's tough 
Boring 
Overwhelming 
But it's also exciting 
Fun 
Enjoyable 
With recovery 
I get to live the life I want to live
I have my loved ones around me
Family 
Friends 
Dogs 
I study
I work 
I exercise 
I enjoy my food 
And am not in a constant battle with myself over food, weight and body image

You would think that this is a no brainer
That most sane people would choose the latter 
But since when have I been sane?
I feel the pull of my ED 
I hear her whispering in my ear
All of things that will improve if I lose weight 
I can't lie 
It's so very tempting 
She is convincing 
And I have little resistance 
If I keep going the way I am
I'm going to be underweight very soon 
But the thing is 
I have reached the goal I set myself 
And in fact gone beyond it
That should be enough right?
Maybe for a 'normal' non eating disordered person
For us
The goal posts constantly shift
Anorexia will push you as far as it possibly can
To your very limits 
Until something gives
Your body or your mind 
I have no doubt that my ED wAnts me dead 
That is her goal
To either starve myself to death 
Die of a heart attack
Or tAke a handful of pills 
The ultimate sacrifice 

Having said all that 
I'm not about to throw my recovery and my life away 
I've worked too hard to get through my issues 
And I didn't come through heroin addiction just to be killed by my ED 
I have thought about sharing my weight here on my blog 
But have decided against it
I've never shared my weight here 
I just don't think it's relevant 
And I know we have a tenancy to zone in on the numbers 
And compare their weight
So in an effort to avoid that 
I won't be posting my weight 

Another reason things are tough at the moment 
Is that my sister is battling a very nasty bout of depression
And is feeling really low these days 
Its a bit of an eye opener to be on the other side of mental illness 
I'm so used to being the patient 
The one that needs the help
So to actually be the onlooker is really difficult 
My sister is quiet
Withdrawn 
Very upset at times 
And feeling quite hopeless 
It's so hard to know what to say to someone 
How to help 
My strategy to help her
Is to make her laugh
As I genuinely believe that laughter is medicine for the soul 
I give her hugs
Sit on her bed and just chat
She comes for walks with me sometimes 
But 
It's obvious that she is really struggling
It's really  sad to witness 
And my mother and I feel so helpless
And useless 
I wish there was more we could go to help 
All we can do is be there 
Make sure she is ok
That she is warm
Eating ok
The dogs are really good with her 
They sit by her 
Rest their heads on her knee
It's like they know 
And they probably do 
I've never witnessed or lived with someone who has chronic depression 
Well I did when I was in hospital 
The people who were really low rarely came out of their rooms
Only venturing out to the smoking room every once and a while 
I remember one guy in particular 
We spoke while chain smoking 
Sitting on the window sill 
Blowing smoke rings back and forth
This guy was in the depths of despair 
Like he had completely given up
He wore the same clothes day in day out 
And there was quite a smell off him
He just couldn't muster the energy to have a shower 
He didn't see the point 
Didn't see the point of anything 
I've experience low mood before 
But I can't say that I've been clinically depressed 
I do worry for my sister 
I know she that she is trying to fight it 
And it's taking every single ounce of energy out of her 

Anyway 
I just wanted to explain my situation at the moment 
I guess there comes a time when real life needs me more than my virtual life
And that's ok
I am ok
and my sister is ok
At least we will be...

Saturday

I was supposed to be getting my next piercing done this week
But the girl I went to last time is away
And won't be back until mid January 
There are a couple of others near by
But they don't come highly recommended
And they don't use titanium
So I think my best bet is to hold on for the person I know to come back
Annoying 
But necessary
Especially given that I have absolutely no patience 
And want everything yesterday 

I was texting a girlfriend from school yesterday
She has had a myriad of piercings in her time 
Including all over her ears and face
Both nipples 
And down below!
I was asking her where she gets them done 
She said she had some done in Dublin
But a few of them she did herself 
I was blown away by this 
But she said she really enjoyed doing them
Of course my next questions was how todo it
She sent a brief text that involved a sterilised needle, ice, gloves and a clean towel 
I was fascinated 
So when we finished texting 
I decided to do a little research on line
And of course 
There are many many home videos on YouTube 
Showing how to pierce various pars of your body
As well
As detailed explanations on Google
I read through a few 
And I actually did consider it 
Yes 
I am one of those slightly crazy people who thinks piercing yourself from the comfort of your own home is a good idea
So I consulted my sister
Who is always the voice of reason
She told me in no uncertain terms 
That I would be absolutely mental to do that 
And I let her talk me out of it
Part of me was relieved 
As I can imagine that it hurts like a mother....

But
I guess it gives me time to think about what to get done next 
As I'm not really sure at the moment 
I'm trying to decide between my lip
My septum
Or Medusa 
As you know 
I live my life on the verge of impulse
And often make silly decisions based on that 
So I will be a responsible adult 
And think my decisions through
Albeit being forced in to it....

Less than two weeks until Chritsmas kids!
All my cards have been posted 
The house is decorated 
The Christmas cake is maturing 
And we feed it with sherry every week
The turkey is ordered 
The shopping will soon be done 
And all I have to get is my Christmas gift for my sister 
I am looking forward to a quiet family Christmas 
No fuss 
No stress 
Just good old fashioned fun
Sans alcohol of course 
But I was wondering about you? 
Do you celebrate Christmas? 
How?
Who will you celebrate with?
Do you have any Christmas traditions?
Maybe you don't like the holidays
How do you get through?
Answers on a postcard please.....

By the way
I didn't reply to comments yesterday as I didn't read them after the first one 
Which was accusing me of driving illegally 
I'm done done replying to these comments 
And even though it's not an anonymous comment
It might as well be
When I crashed my car
That was years ago 
It's in the past 
Yes, I made some stupid mistakes when I was using 
But the clue is in the fact that I was using 
I wasn't in the right frame of mind 
Do I regret my actions from back then?
Yes
Can I change them? 
No 
So I do my best to learn the lesson and move on 
That's all I can do 

Friday, 11 December 2015

Cathartic.co

I was recently contacted by a lady called Sophie Burton
Who runs a site called Cathartic.co
It's a site where peoe can share their stories anonymously 
Help themselves
And help others too
Sophie interviewed me for the site 
And below is the link
Hope you enjoy.....

Wednesday, 9 December 2015

Christmas survival kit!

Christmas is fast approaching
I swear I blinked and this whole year went by
For me
Christmas is a double edged sword
Part of me loves it
The lights
The atmosphere
The Christmas spirit
Wrapping up in woolly clothes
Snuggling up beside the fire
Going for walks in the crisp winter air
But like a lot of people 
I can really struggle with the holiday too
They don't call it the silly season for nothing 
Christmas in this country seems to be about two things
Alcohol
And food 
Both of which I have issues with 
I remember back to my teens and early twenties 
Christmas was all about the pub
I can remember going to the pub after school
Changing out of my uniform in the bathroom
On a Friday the pub staff ordered boxes of chicken wings for the punters 
Oh to be able to eat chicken wings without my ED in my head
Still
I can get nostalgic around this time of year 
And there is nothing more Christmassy than a hot toddy
Or a glass of brandy
Unfortunately 
I just can't drink 
And neither do most of my family 
Now a days we have a strictly alcohol free house for the holidays 
We have learned the hard way that my family and alcohol just do not mix
I can remember growing up
Drinks 
Followed by dinner
Followed by more drinks
Followed by huge family argument
No 
No drink is worth the peace of mind that we have now

So 
How do we get through the holidays 
Stay sane 
And not harm ourselves or anyone else?
Well
It's tricky 
Christmas time often means spending much time with family and people you don't usually see from one end of the year to the other 
It means being cooped up inside for 24 hours straight 
Putting on a happy face when you unwrap your gifts and see that auntie Margaret has given you lavender soap yet again 
It means eating to the point that you feel
Positively ill
Watching the Christmas movie
And promptly falling asleep on the couch
While your nephew draws on your face

Try not to let the idea of Christmas dictate the days and weeks leading up to it
And try not to anticipate what the day itself will be like 
For the eating disordered 
Christmas can be tough 
The build up to the holidays
Being out of your usual routine
All the emphasis on food and drink
The socialising 
Expectations for the perfect day can all contribute to stress, pressure and anxiety
And things generally being out of sorts for a couple of weeks 
I guess the first thing to do is not to panic 
Take deep breathes 
And remember that Christmas is just one day 
24 hours 
Our routine may be all over the place
But one day is manageable 
We can get through it
For me 
It's important to stay busy 
I usually bring the dogs to the beach on Christmas morning
And watch the charity swim
Then I go to mass with some of my family 
Get home
And get stuck in to helping with the dinner
Staying busy gives me less chance for my mind to wander and become anxious 
I know it seems like food is everywhere at this time of year 
But remember 
If you eat more than usual on the day
It's ok 
In fact it's normal 
Everyone does it 
So don't panic 
Don't beat yourself up
It's completely natural to eat a little bit extra sometimes 
Everything in moderation
Including moderation 

The thing I find the toughest about Christmas is all the socialising 
Our house is the main focus of our family
So there are a lot of visitors over the holidays 
A constant stream of people in and out
Actually
It's more the thought of all this activity
When it's actually happening 
It's not too bad 
It's more the thoughts of it
And the anxiety that goes with that
Over Christmas 
It's important to remember to look after yourself
To be kind to yourself 
And not to put yourself under too much pressure 
Do what you feel you can do 
Be that a little or a lot 
No one expects you to be Wonder Woman
Although we seem to expect that of ourselves 
Also 
Take some time out for yourself if you need to
Take half an hour on your own to recharge your batteries 
Meditate 
Practise mindfulness
Or get out for a walk 
To clear your head 
And take a breath
Listen to music 
Read a book
Something I have to be wary of 
Is all or nothing thinking
Eating none of the food
Or all of the food 
Thinking because one thing goes wrong
Everything is ruined 
One good idea 
Is to have a buddy on stand by 
Someone you can give a quick ring of things become too much 
You can also be someone else's buddy 
Having a voice of reason
To bring you back down to earth can be invaluable 
Of course support is a two way thing
So both of you will benefit 
Be mindful of isolating over the holidays 
Stay in touch with your supports 
Beware of all or nothing thinking that leads to unrealistic and rigid expectations
It's about listening to you and your body 
And knowing that it's ok to have what you want 
Remembering that it is just one day and nothing awful will happen if you change the rules
Reminding yourself thdt Christmas is not only about food
Food is just one part of it
And may need some planning to work for you 

With all that said
Remember it's Christmas
It's to be enjoyed 
Yes, we will struggle 
And our EDs often don't want us to enjoy ourselves 
Especially around anorexia 
It's all about being strict and regimented 
And punishment can feature too
Because you know what guys?
We are far too hard on ourselves
We are the first ones to bring ourselves down 
We bully ourselves 
Verbally and physically
We deserve a break
We deserve to enjoy our Christmas 
In whatever form that may take 
God knows we are dealing with enough every other day of the year
Eating disorders 
Mental illness 
Addiction 
Self harm
We deserve at least one day to relax
To enjoy ourselves 
Whether you are in the midst of your illness
Or embarking on recovery 
We all deserve to smile
To laugh 
To throw some shapes on the dance floor 
To let our hair down
Because when else can we get the chance to do that?

So
I wish you and yours
A very happy and peaceful Christmas
I hope you get to spend time with the ones you Iove
Hold them close
Hug them tight
Cherish every moment with them
Because they are the ones that matter
They are the ones who hold our hands
Who pick up the pieces when it all falls apart
This year I  especially grateful to have my family around me
With everyone in good health 
We have much to celebrate this year
I hope you do too...