As I type this
I am sitting in a waiting room
In clinic D
Which is the Motor Neurone Disease clinic
In Beaumont hospital
On the north side of Dublin
I think I mentioned that my Dad was diagnosed with MND a few months ago
Which affects his lower limbs
His hands are pretty much crippled
He can't open or close buttons
Pull his zips up
Has trouble eating
Opening bottles and jars
His legs are also affected
And he now walks with a stick
At one point today
Dad came out of the bathroom holding his trousers up
And I had to zip and fasten them for him
Not that I mind doing it at all
It's just sad that he can't
It was a real shock when he was diagnosed
And we were all very upset
But we are told his particular illness is slow progressing
So
Every couple of months
Dad visits the MND clinic in Dublin
Where he is seen by the top neurologist in the country
Professor Orla Hardiman
Amongst others such as the physiotherapist, the psychologist
And various other specialists
This time
Myself and my sister have made the trip to Dublin with my Dad
To give you an idea of the journey
Dublin is on the east coast
We live on the west coast
And Dad lives right in the middle between the two
It's a three hour journey each way
Which makes for a very long day
I really wanted to come today though
To support my Dad
And also support my sister who drove today
I wanted to experience the clinic
And meet all the specialists that Dad talks about
My sister and left home at about 9am this morning
We hit the road in good spirits
Prepared for a long and possibly stressful day
We arrived at my Dads at about 11am
Which is the house I grew up in
I don't go back to my home town as a rule
As it is just one big trigger for me
We drove through the town itself
Some things hadn't changed
Others were unrecognisable
Being back in my childhood home is always very strange
Every time I visit there it seems to get smaller
Or maybe I'm getting bigger
I took a walk around the living room while waiting for my Dad
So many ghosts and memories
Mostly not good
I could almost hear the shouts of arguments
Feel the tension
The bad energy that lingers
Truth be told
I don't like being there
I never did
Anyway
We hit the road to Dublin
I decided not to take my meds until I got home
As I wanted to be as alert as possible
We arrived in Dublin at lunch time
Found the hospital with relative ease
Parked in the disabled bay
Getting out of the car and in to the hoSpital
Was akin to getting a child ready
We had to put his jacket on
Get his bag with all his bits and bobs
Get his stick
Fix his clothes
All the time watching that he doesn't trip or fall
The my sister accidentally knocked Dads disability parking disc down the front of the car
Which with the use of a handy credit card
We managed to retrieve
And headed in to the hospital
As I walked through reception
I saw a sign for ST. Michaels ward
Where I spent time when I was 19
In the detox unit
Detoxing from heroin and methadone
I was just a kid
In a locked ward with hardened addicts
It was there I was first told that I had anorexia
Bad memories
We found clinic D
And took a seat in the waiting room
My sister and I went to get teas and coffees and sandwiches
Which we had while we waited
Looking around
There were people in all states of MND
Some like my Dad walking with sticks
Some in wheel chairs
It was a bit of an eye opener to see the way things could possibly go
We weren't waiting long
Before we were called to see the first doctor
Dr. Amina Coffey
She was a young Muslim doctor
Very pleasant
And very thorough
As she carried out the examination
My sister took rough notes of things we would need to remember
Then professor Hardiman saw Dad briefly
They seemed happy that things were going relatively well
And there was no great deterioration
Next we saw Niamh
One of the physiotherapists
Whose area seemed to be a closet off the waiting room
She went through a questionare with Dad
Now we are back in the waiting room
My sister is dozing
I am blogging
And Dad is looking pensive
In with the doctor
Dad mentioned that his appetite has been effected
And later on admitted to me that when he is hungry
He can't just make something easily
So he just has a cigar and a cup of tea
This worried me some
So the doctor weighed my Dad
His weight was 76.9 kilos
I asked what it had been at his last check up
She told me that it was 78.9 kilos
So he has lost a little bit of weight
Not enough to be alarmed
But it's something to watch
It's now just after 4pm
And we are all starting to flag a bit
Waiting around like this is pretty exhausting
And we still have the drive home to look forward to
It's a real role reversal though
My Dad used to bring me to Dublin
To appointments
To treatment centres
And now I'm bringing him
I can really see him getting old
And it's not nice
My Dad was always active
Coached basketball teams for years
And to see him deteriorate is tough
But that's life I guess
Anyway
I'll leave you here
And hopefully we'll be finished her soon
I'm sure some of you can relate to parents becoming ill and old
I was wondering how you all deal with it ?
Right
I'm off
See you on the next post....